Your Ben’s Friends Team (Ben, TJ, Seenie, relatives and friends) are heading out to Glacier National Park to fundraise and prove what we all know:
- Rare disease patients can and do!
- Ben’s Friends gives the emotional and social support that changes rare disease patients’ lives.
If you can’t join us on our *Foot and Float, *how about a small donation to help build new Ben’s Friends Rare Disease Communities:
https://www.gofundme.com/f/help-support-rare-disease-communities
Donating couldn’t be easier: just click the link!
Between the ten members on the Ben’s Friends Team, in addition to their primary diagnoses of AVM, Cancer, Psoriatic Arthritis, Congestive Heart Failure, Lupus, Fibromyalgia, Extreme Sleep Disorders, Ehlers Danlos, Idiopathic Seronegative Spondylopathy, Acalculous Gallbladder Disease, and Ankylosing Spondylitis, also can lay claim to:
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Combined age: 520 (oldest 75, youngest 12)
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Cancer Survivors: 3
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Stroke Survivors: 2
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Joint replacements (so far): 9
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Spinal Injuries: 2
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Total Surgeries: 83
More importantly -
Bad attitudes and depression helped, and the ability to self advocate promoted by Ben’s Friends: 10
This team is dedicated to hike/paddle 500 miles over 5 days in August to raise enough money to start 10 new BF communities. If you haven’t shared our fundraiser and story with your networks yet, could you? Would you?
Just copy, paste, email and share this link as many times as you can:
https://www.gofundme.com/f/help-support-rare-disease-communities
Your Ben’s Friends Team and rare disease patients around the world thank you!