I think my disability is getting worse. I know very few people will understand but I went through years of physical therapy for it and I stopped going over 3 years ago but I fear that I will never be able to walk normally again. I don’t know if I can handle this anymore. I seriously don’t know what’s wrong with me, I just need someone to talk to, so if anyone’s out there, can you please message me or something I don’t really know how this works.
Hi @ShayC1! I’m sorry that you’re going through such a rough time. Sometimes I feel like the worst part of being disabled is the fears and depression that can go along with it.
Reaching out to people is a very good first step. You may also want to consider seeing a therapist. I know that when I had back surgery years ago, I became disabled then too. I was 25 years old with my whole life in front of me, and I had constant pain and a bad limp. Thankfully I recovered from that, but the depression was quite severe. I did seek out therapy, and while it didn’t solve the physical problems, it helped me learn how to manage them.
Big hugs to you,
Sharon
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Hey Shay,
My name’s Merl and I’m a member here in the TBI community. A brain injury can often be like no other bodily injury. Unlike a muscular/skeletal injury there is no set time for a brain injury, symptoms can often fluctuate MASSIVELY, mine does anyway.
Some days I could leap a tall building in a single bound (maybe that’s a bit of an exaggeration, but I can function at least), some days I’m lucky to be able to crawl out of bed, I can never tell from one day to the next. The acceptance of this reality has been a huge challenge and even years on I still can’t say I have ‘fully’ accepted it. On the good days, yea, things are OK, not great but OK. But on the bad days, it can be real bad and does my head in something terrible. Some people say 'Just accept it all and move on…" but it isn’t that simple and we know that because we live it too.
How it works? how it works is just like this. You post, as you have above and someone usually replies, just as I have here. I’m on here most days, so please do drop by.
Merl
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In 2004 at age 11yo I spent 3 months in a coma, due to a horse accident. As I regained consciousness I was unable to use my left limbs therefore I was wheel chair bound, after months of rehabilitation I graduated to a 4 legged cane. Sometime since then I just use a regular cane in public and free bird it at home and use the wall if need be. Obstacles come every day but I’d rather live and do all I can do for the most part, days do come when I feel usless to the world but, my spirit lifter is thinking of the “normal” people who say they can’t do something because it’s to hard and doing just that or something similar.
Hey Morgan
Welcome to Ben’s Friends.
It sounds as if you’ve worked hard to get to where you are today progressing as you go.
That is a good way to look at things too, if you can. For some of us though, it ain’t quite that easy and some of those stumbling blocks can be a bit more difficult to get over. As I’ve said before on here, the acceptance of this reality has been REALLY difficult for me to be able to move on. Some days I can be OK, but on other days I’m far from OK. I feel if my symptoms were plateaued and did not fluctuate as massively as the do, moving forward may not be as big of an issue. But then we all need to learn to manage the best way we can and many years on… …I’m still learning.
Merl